The Struggle is Real…

Some stats…6 days since my stitches were taken out. 18 days since my surgery. 18 days that I’ve been wheelchair bound = 18 days that I haven’t been able to put on prosthetics and walk. At least another 7 days until I can put my prosthetics on. And 4 days since my allergic reaction (yes, another one)…
The last few days have been rough. I thought it would be smooth sailing once the drain was taken out and the stitches removed…mmm..not so much. 2 days after I had my stitches taken out, I noticed something was off. The incision areas were “leaking”…I was having an allergic reaction to something. Wonderful. After the stitches were removed, they put Steri-Strips on the areas Steri-Strips and used Mastisol (liquid adhesive) to secure them. Mastisol I got a reaction to the Mastisol. Here’s the irony in this. This was taken off a site on Mastisol, “Reduce the likelihood of dressing or device migration and minimize the risk of infection by creating a lasting occlusive dressing barrier by incorporating Mastisol, an adjunct liquid adhesive that is non-staining and has a lower risk of adverse reactions.”…and yet I got an adverse reaction. My incision areas developed a rash and my skin started to become macerated and “blistery”. I’ll spare everyone the pics the pics that I took…The blistering was what was causing the leaking and “sweating”. 4 days later the sweating/oozing has finally started to decrease (I think/hope), but it’s been a long 4 days. The first day I noticed it, I was concerned, but something similar had happened to me back when I had my surgery in March so I wasn’t too freaked out. Then the 2nd day when the sweating increased, I started to freak out a little. But I emailed the doc and his team and they said to just be on top of changing the gauze and try to keep it dry. So these last couple of days have just been watching, waiting, and hoping for the sweating to stop or at least decrease. And in hopes of not jinxing myself, it looks like it’s finally starting to ooze less (knock on wood). It’s been a very stressful few days and what makes this allergic reaction even more aggravating is that it is potentially prolonging me being able to put my prosthetics on. As it is, I haven’t been able to wear my shrinker or my liner. Both of which, are very helpful in reducing the swelling. But…I need to let the areas air out as much as possible, since they’re macerated.
Surgery in March – Discovery of infection? Check. Antibiotics? Check. Allergic reaction that added to my recovery time and was SUPER aggravating and frustrating? Check.
Surgery in September – Discovery of infection? Check. Antibiotics? Check. Allergic reaction that added to my recovery time and was SUPER aggravating and frustrating? Check.
Between March and now, I’ve discovered that my incision areas are super sensitive to any type of adhesive and that I’m allergic to Levoquin (an antibiotic), which coincidentally also brings about an annoying skin rash. Moving forward, no adhesive anything near incision areas post surgery! Instead of eating things and then potentially discovering I’m allergic to something, I like to reveal my allergies by having surgery. Doesn’t that sound like more fun?!?
Just another bump in the road. It could be worse…Both these statements are true and are applicable in this situation. But that doesn’t mean it makes it suck any less or that hearing it makes things any better. I know that the rest of my isn’t going to be a smooth road and that post accident, my entire life has been re-routed and that I’ll probably need to take detours for the remainder of my life…but enough with the constant construction already!…over it.
The struggle is real…

1 thought on “The Struggle is Real…

  1. I too had a horrible Mastisol reaction in May, 2020 and it caused my wound to open which i then had to pack and do wet to dry dressings for quite a while. It struggle to close from the inside out and kept opening back up. Yesterday, November, 2020, a plastic surgeon took me into surgery to take a look inside and close it a different way since I never got the closure from beginning.
    Apparently this is a rare allergy but yet a severe one when it happens. Hope you are doing well.

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